MySMA Support is here for you

MySMA support team

MySMA Support is a support service from Genentech that can help provide information about Evrysdi.

Partnership and Access Liaisons (PALs) are the local contacts for MySMA Support. They work with the rest of the MySMA Support team to help you throughout the treatment journey.

Find a PAL near you

You can also get updates and additional information about Evrysdi delivered to your inbox. Sign up to be among the first to know more.

The MySMA Support team, including the PAL, does not provide medical advice and is not a substitute for your medical team. Your healthcare provider should always be your main resource for any questions about your health and medical care.

 

Learn how the MySMA Support team can support you

Talk to a PAL

A PAL is available for in-person and virtual support, based on your preference, and can:

Answer questions on Evrysdi®️ (risdiplam), including how it works, when to take it, what results were seen in clinical trials, and important safety information. Explain insurance coverage and potential financial support options. Refer you to helpful resources.

A PAL is not a part of your medical team and is not a substitute for your healthcare provider. PALs do not provide medical advice. Your healthcare provider should always be your main resource for any questions about your health and medical care.

A Case Manager helps navigate coverage and financial support

While a PAL will remain the main point of contact for MySMA Support, Case Managers are part of our virtual support team. A Case Manager partners closely with PALs and healthcare providers to help you understand the health insurance process and identify financial support options for Evrysdi

A Case Manager can:

  • Facilitate the health insurance process to help you better understand your coverage for Evrysdi
  • Identify available financial support options
  • Partner with the specialty pharmacy to help with a smooth delivery of Evrysdi

A specialty pharmacy will prepare and ship Evrysdi directly to you each month

Evrysdi is not available at retail pharmacies.

  • You will receive a call from a specialty pharmacy to welcome you to the program and to schedule delivery times that work best for you. It is important that you answer calls from them to prevent any delays in treatment
  • Although the specialty pharmacy is not a part of Genentech, it is an important part of the MySMA Support team.

Contact your specialty pharmacy with questions about shipping and packaging. A pharmacist is also available to answer questions about the product.

For more information, contact MySMA Support at (833) 387-9734 (Monday-Friday, 9 AM to 8 PM ET)

Insurance Guide for Evrysdi

Use this guide to better understand potential insurance and financial support options for Evrysdi

What is Evrysdi?

Evrysdi® (risdiplam) is a prescription medicine used to treat spinal muscular atrophy (SMA) in adults and children 2 months of age and older.

 

It is not known if Evrysdi is safe and effective in children under 2 months of age.

  • Before taking Evrysdi, tell your healthcare provider about all of your medical conditions, including if you:
    • are pregnant or plan to become pregnant. If you are pregnant, or are planning to become pregnant, ask your healthcare provider for advice before taking this medicine. Evrysdi may harm your unborn baby.
    • are a woman who can become pregnant:
      • Before you start your treatment with Evrysdi, your healthcare provider may test you for pregnancy. Because Evrysdi may harm your unborn baby, your healthcare provider will decide if taking Evrysdi is right for you during this time
      • Talk to your healthcare provider about birth control methods that may be right for you. Use birth control while on treatment and for at least 1 month after stopping Evrysdi
    • are an adult male planning to have children: Evrysdi may affect a man’s ability to have children (fertility). If this is of concern to you, make sure to ask a healthcare provider for advice
    • are breastfeeding or plan to breastfeed. It is not known if Evrysdi passes into breast milk and may harm your baby. If you plan to breastfeed, discuss with your healthcare provider about the best way to feed your baby while on treatment with Evrysdi
  • Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Keep a list of them to show your healthcare provider and pharmacist when you get a new medicine
  • You should receive Evrysdi from the pharmacy as a liquid that can be given by mouth or through a feeding tube. The liquid solution is prepared by your pharmacist. If the medicine in the bottle is a powder, do not use it. Contact your pharmacist for a replacement
  • Avoid getting Evrysdi on your skin or in your eyes. If Evrysdi gets on your skin, wash the area with soap and water. If Evrysdi gets in your eyes, rinse your eyes with water
  • The most common side effects of Evrysdi include:
    • For later-onset SMA:
      • fever
      • diarrhea
      • rash
    • For infantile-onset SMA:
      • fever
      • diarrhea
      • rash
      • runny nose, sneezing, sore throat, and cough (upper respiratory infection)
      • lung infection
      • constipation
      • vomiting

These are not all of the possible side effects of Evrysdi. For more information on the risk and benefits profile of Evrysdi, ask your healthcare provider or pharmacist.


You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at 1-888-835-2555.


Please see full Prescribing Information for additional Important Safety Information.