What to know about Evrysdi (risdiplam)

It’s a liquid treatment taken by mouth or feeding tube that is:
Delivered directly to you. Stored in the refrigerator. Given after measuring your dose with the oral syringes provided. Taken once a day by mouth or feeding tube.

How to take Evrysdi

Talk to your healthcare provider to learn more about Evrysdi for spinal muscular atrophy (SMA).
These are not the full dosing instructions for Evrysdi.

Download the full Patient Information and Instructions for Use for additional information and full instructions on taking Evrysdi.

 

Taking Evrysdi at home

Your shipment is delivered directly to your door and will contain a 1-month supply of Evrysdi
Each package within the shipment includes up to 3 bottles of liquid medication with botle adapter and cap, reusable oral syringes, instructions for use, prescribing information and patient information.
You can administer Evrysdi to yourself or with the help of the person who cares for you. it should be taken around the same time each day after a meal. Your healthcare provider will determine the right dose for you based on age and weight. Always take the dose exactly as prescribed.

Additional dosing information

Do ask your healthcare provider how to use the reusable oral syringe and how to measure to your prescribed daily dose. Do always use the oral syringes that come with Evrysdi and contact Accredo immediately if you receive oral syringes that are not identical in size. Do take the dose of Evrysdi that your healthcare provider has prescribed to you or the person in your care. Do take the dose at the same time every day after a meal. Do store medication upright in the original amber bottle and close the bottle cap completely after using. Do keep Evrysdi refrigerated, 36 degrees Fahrenheit to 46 degrees Fahrenheit. Do check the Discard After date so you don't use expired medication. Evrysdi expires 64 days after being prepared by a pharmacist. Do ask Accredo for the Discard After date if it is not written on the bottle label. Do not take Evrysdi if the bottle adapter is not in the bottle. Contact Accredo immediately if you receive a bottle without an adapter. Do not take Evrysdi if it is in powder form, or if the bottle is damaged. Contact Accredo immediately if the medicine in the bottle is in powder form. Do not get Evrysdi on your skin or in your eyes. If it gets on the skin, wash with soap and water. If it gets in your eyes, rinse with water. Do not mix Evrysdi into foods, liquids, formula, or milk. Do not take Evrysdi if the bottle or oral syringes are damaged. Do not freeze Evrysdi. Do not put the medication in a different container from the one it comes in. Do not mix Evrysdi from the new bottle with the bottle you are currently using

The MySMA Support team can answer additional questions about your prescription, but your healthcare provider should always be your primary resource for any questions you have.

 

FAQs about taking Evrysdi (risdiplam)

How much medicine do I take every day?

Can I take Evrysdi with food or mix it with liquid outside of the syringe?

How should I store Evrysdi while traveling?

What if a dose is missed?

How do I get Evrysdi?

*Accredo Health Group, Inc., is an Express Scripts specialty pharmacy. Accredo is not part of Genentech and maintains independence in its operations as a specialty pharmacy and in its role as a healthcare provider. 

Getting Started with Evrysdi

Download a step-by-step guide to taking Evrysdi by mouth or feeding tube

Download
Find a PAL near you

A Partnership and Access Liaison (PAL) can answer your questions about Evrysdi. Get in touch with a local PAL to learn more.

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