Evaluating a non-invasive treatment

These community members wanted a treatment that fit into their day, wherever it may take them. Hear how an oral at-home treatment worked well with their routines.

The most important part of Payton’s daily routine is that Evrysdi. I absolutely love being able to give Payton her medicine at home. Payton takes her medication early morning, so I wake her up, get her some breakfast, and then she gets her Evrysdi, and we are out the door. She’s so used to it now that she takes her pacifier out and opens up ready to get her dose every day. Evrysdi really matches our lifestyle.

I’m a man of routines, and so I just incorporate it into my daily routine. Middays, I stop at work and take the Evrysdi, wash it down with a little bit of water afterwards, and get right back at it.

When I think about giving Bear his treatment at home, I am always impressed. It feels kind of unbelievable that we went from really having no options to having a treatment that is in my refrigerator that I can travel with, that he can take anywhere, that I can give it to him if he’s taking a nap because it goes through his G-tube.

It works for my life perfectly because it’s an oral medication, and I can stay home and take it. I typically take my Evrysdi at nighttime; after a big meal, I take Evrysdi. I have an Evrysdi cooler, and I use that, and I carry it wherever I’m traveling to. So, I’m not confined to taking my medication at one place.

Making the change to Evrysdi has been amazing, and taking Evrysdi at home fits with my lifestyle and it fits with my schedule. Every morning, I have my breakfast, and my caregiver helps me take Evrysdi. I have a little bit of water, and I go about my day.

So, when we travel, I take Evrysdi with me. It goes in a cooler. That way it can stay regulated at a certain temperature and it’s ready to go. We lead very busy lives. We are constantly filling up our schedule. We’re running out the door late to school, or maybe we’re off camping for the weekend. Evrysdi works for our family because it’s on the go, just like us.

What we really like about Evrysdi is it just fits into our daily life. It’s a liquid I take every day. Even if we travel, we just take it with us, and wherever we are, whether we’re at home or whether we’re traveling, I can take it.

This is how I Evrysdi.

This is how I Evrysdi.

This is how we Evrysdi.

This is how we Evrysdi.

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Important Safety Information and Indication

What is Evrysdi?

Evrysdi is a prescription medicine used to treat spinal muscular atrophy (SMA) in children and adults.

  • Before taking Evrysdi, tell your healthcare provider about all of your medical conditions, including if you:
    • are pregnant or plan to become pregnant, as Evrysdi may harm your unborn baby. Ask your healthcare provider for advice before taking this medicine
    • are a woman who can become pregnant:
      • Before you start your treatment with Evrysdi, your healthcare provider may test you for pregnancy
      • Talk to your healthcare provider about birth control methods that may be right for you. Use birth control while on treatment and for at least 1 month after stopping Evrysdi
      • Pregnancy Registry. There is a pregnancy registry for women who take Evrysdi during pregnancy. The purpose of this registry is to collect information about the health of the pregnant woman and her baby. If you are pregnant or become pregnant while receiving Evrysdi, tell your healthcare provider right away. Talk to your healthcare provider about registering with the Evrysdi Pregnancy Registry. Your healthcare provider can enroll you in this registry or you can enroll by calling 1-833-760-1098 or visiting www.evrysdipregnancyregistry.com
    • are an adult male. Evrysdi may affect a man’s ability to have children (fertility). Ask a healthcare provider for advice before taking this medicine
    • are breastfeeding or plan to breastfeed. It is not known if Evrysdi passes into breast milk and may harm your baby
  • Tell your healthcare provider about all the medicines you take
  • You should receive Evrysdi from the pharmacy as a liquid. If the medicine in the bottle is a powder, do not use it. Contact your pharmacist for a replacement
  • Avoid getting Evrysdi on your skin or in your eyes. If Evrysdi gets on your skin, wash the area with soap and water. If Evrysdi gets in your eyes, rinse your eyes with water
  • The most common side effects of Evrysdi include:
    • For later-onset SMA:
      • fever
      • diarrhea
      • rash
    • For infantile-onset SMA:            
      • fever
      • diarrhea
      • rash
      • runny nose, sneezing, and sore throat (upper respiratory infection)
      • lung infection (lower respiratory infection)
      • constipation
      • vomiting
      • cough

These are not all of the possible side effects of Evrysdi. For more information on the risk and benefits profile of Evrysdi, ask your healthcare provider or pharmacist.

You may report side effects to the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Genentech at 1-888-835-2555.

Please see full Prescribing Information for additional Important Safety Information.

    • Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.

      Información de prescripción de Evrysdi® (risdiplam). Genentech, Inc.