How much medicine do I take every day?
Your recommended dose is based on age and weight, with a maximum recommended dose of 5 mg once daily, which is a little over a teaspoon. Your doctor determines your dose. Always take your dose exactly as prescribed. If you have questions, speak to your healthcare provider.
Can I take Evrysdi with food or mix it with liquid outside of the oral syringe?
Evrysdi should be taken after a meal. It should not be mixed directly with any food or liquid (including formula or breast milk), and should only be taken with the approved oral syringe, which has been designed to protect the solution from light.
Will the syringes that come with Evrysdi work with feeding tubes?
Yes. Each monthly shipment of Evrysdi will include syringes that will work with a variety of feeding tubes, including ENFit®. If the specialty pharmacy does not provide the correct adapter to fit your feeding tube, they will work with you to get one that does.
What should I do if my child spits up, vomits, or doesn’t swallow the whole dose after I give the medication?
Do not give any more medication that day. Wait until the next day to give the next dose at the usual dosing time. If your child continues to spit up or vomit while taking Evrysdi, talk to your healthcare provider.
What if a dose is missed?
The missed dose should be taken as soon as possible, but no more than 6 hours after the usual dosing time. If more than 6 hours have passed, skip the missed dose altogether and take or give the next dose the following day at your regularly scheduled time.
Who should I call if I have other questions about Evrysdi?
Your healthcare provider should always be your main resource for any questions about your health and medical care. You can also contact MySMA Support to connect with a PAL, who can answer questions about Evrysdi, and refer you to helpful resources. PALs can also help you understand your insurance and financial support options. Contact MySMA Support at (833) 387-9734 (Monday-Friday, 9 AM to 8 PM ET).